Get the Scoop - My Breast Cancer Support Group

The discovery of breast cancer profoundlyattend the support group for a while, but soon
affected all my relationships: husband, sons, closeafter my move it dispersed. A few years later I
and casual friends, co-workers, and bareexperienced a recurrence of my breast cancer.
acquaintances. Unless those folks had experiencedSince no conveniently located support group
it themselves, they could not possiblyexisted in this area, I joined an online group
comprehend the emotions and perceptions withthrough the Association of Cancer Online
which I grappled. Finding a breast cancer supportResources. This forum (known as ACOR)
group was essential to my psyche, to myprovided invaluable information and tips beyond
well-being.what I could glean from the Internet or various
My quest to find understanding soul mates endedbooks about recurrences. I found that treatments
when I joined a breast cancer support group forfor breast cancer had changed substantially since
younger women after my first chemotherapymy earlier encounter with chemotherapy. In
infusion. We met at the local hospital with aparticular, it seemed important to update myself
trained facilitator. At the time I was 43 andon the latest targeted biological drugs.
thought myself too old, but my Christian friend,I was diagnosed with my recurrence and being
diagnosed a few months earlier, convinced me totreated with chemotherapy before one such drug,
go because I had young children ranging in ageHerceptin, was approved for treating early-stage
from 3 to 11.breast cancer.
The sessions were therapeutic for a newlyAfter its approval, about 14 women got together
diagnosed woman. We shared our ups and downsin Bakersfield, California to begin their one-year
and the inappropriate words people said to usHerceptin infusions as a group. Calling themselves
during our ordeals. Tips on caring for ourselvesHER2 Sisterhood, the women typically sat in a
during treatment were invaluable. Insurancecorner of the infusion area. Not only did they tell
hassles were discussed. The group was mostlystories and jokes about their "chemo brain" and
secular, but two of us Christians foundweight challenges, but they also gossiped and
opportunities to talk about our faith.vented their frustrations over the daily grinds of
As we were completing our treatments weshaving legs and paying taxes.
sensed that we had outgrown the need for aI have found that support groups are generally
clinical setting. We decided to assemble at auseful, but the commonality that brings the
member's home once every few months insteadmembers together in the first place doesn't last.
of meeting at the hospital every two weeks.The groups tend to disband or splinter into smaller
What a pleasant change from the sterileunits. I myself have found I fell away unless I
environment of a conference room! I did feelshared other interests of group members, or was
some remorse at leaving the "official" group ledled to help new members.
by the facilitator, as I was no longer in a positionIn addition to support groups, chat rooms,
to help others who were newly diagnosed. But wediscussion groups, social networks, and blogs, I
all have to decide how we will spend our valuablebenefited from professional and lay counseling.
time, and I still had a husband and three youngPeople outside my breast cancer support group
sons at home to consider.who helped me during my struggles included
At some point I realized that too much timenurses, unexpectedly helpful acquaintances,
away from my sons represented more than justlong-lost relatives, and complete strangers. Such
my getting self-help for cancer-related needs. Thepeople can become friends for life, perhaps as
extra time was turning into a period ofclose as those we already have.
self-absorption. Was I setting up my own City ofSocial isolation need not follow from a cancer
Pity? As a result, I made sure to spend specialdiagnosis. Find a breast cancer support group
time with them, including playing board and cardthrough local hospitals, clinics, and the Internet.
games, watching movies with them, and justHelp is only a phone call or click away. Let your
listening to how they spent their days and whatfingers do the clicking through the Google pages,
was important to them.and see how God will meet your needs.
After we moved to a rural community, God ledHe certainly met mine!
our family to a loving church. I continued to